|
|
 |
|
|
The Caitlin Raymond International Registry is a
comprehensive resource for patients and
physicians conducting a search for an unrelated
bone marrow or cord blood donor. The Registry accesses nearly 5.5 million donors internationally, of which more than 160,000 are cord blood units. Since its inception in 1986, the goals of the organization have been to:
|
Coordinate existing resources,
assist in the development of new donor
sources, and maintain cost effective and
efficient patient access.
Develop and maintain an
information service for physicians,
transplant coordinators and patients
regarding all available donor sources
throughout every aspect of the search
process.
Maintain communications with and
problem solve for the physicians,
transplant coordinators and patients.
Disburse information concerning all
available medical, financial and
community support services.
Monitor search progress and
assist in the identification of problems
resulting in unnecessary delays, costs,
and/or incomplete search results.
Provide physicians, transplant
coordinators and patients with rapid
access to the medical personnel
necessary to educate in such areas as
antigen specificities and provide
assistance with search strategy when
genotypes are rare.
Work directly with the physician,
transplant coordinator and patient to
tailor the search process to meet the
needs of the individual patient.
Increase the donor panel.
|
Your physician will receive an updated report
with every new potential donor identified. You
may request abbreviated copies of these reports
at any time, so please call each week if you
wish to receive an update. If you find the
report confusing or have any questions, please
call 800 726 2824 and a case manager will assist
you.
We are here to coordinate the search for you,
but we encourage you to remain actively involved.
-The Patient Services Staff
PATIENT
INFORMATION LINKS
BLOOD & MARROW TRANSPLANT INFORMATION NETWORK
http://www.bmtinfonet.org/
CARING BRIDGE
http://www.caringbridge.org/
CHILDREN'S ORGAN TRANSPLANT ASSOCIATION
http://www.cota.org
INSURANCE ADVOCACY
http://www.patientadvocate.org
NATIONAL BONE MARROW TRANSPLANT LINK
http://www.nbmtlink.org
NATIONAL TRANSPLANT ASSISTANCE FUND
http://www.transplantfund.org
NATIONAL FOUNDATION FOR TRANSPLANTATION
http://www.transplants.org
MERCY MEDICAL AIRLIFT
http://www.mercymedical.org
PDQ® - NCI's Comprehensive Cancer Database
http://www.nci.nih.gov/cancertopics/pdq/cancerdatabase
SIBLING
DONOR CORD BLOOD DONATION AND STORAGE
CHILDREN'S HOSPITAL OAKLAND RESEARCH INSTITUTE
http://www.chori.org/siblingcordblood/index.html
MEDICAL
INFORMATION
INTERNATIONAL CANCER ALLIANCE
http://www.icare.org/
ONCOLINK
http://www.oncolink.upenn.edu/
THE NATIONAL INSTITUTES OF HEALTH
http://www.nih.gov/index.html
THE LEUKEMIA & LYMPHOMA SOCIETY
http://www.leukemia.org
NATIONAL COMPREHENSIVE CANCER NETWORK
http://www.cancer.med.umich.edu/NCCN/NCCN.html
AMERICAN CANCER SOCIETY
http://www.cancer.org/docroot/home/index.asp
THE NEW ENGLAND JOURNAL OF MEDICINE - ONLINE
SEARCH
http://content.nejm.org/search.dtl
|
|
|
|
|
|
|
|
Copyright © 2004 - 2007 Caitlin Raymond International Registry
|
|
|
|
|
